SCD Cardiovascular, Pulmonary, and Renal
Release Date:
July 30, 2015
Scope of Collection
| Element Considered | Final Measures in Toolkit |
|---|---|
| N-terminal-pro-brain natriuretic peptide (NT-proBNP) | N-terminal-pro-brain natriuretic peptide (NT-proBNP) |
| Cardiovascular Complications | |
| Right Heart Catheterization (RHC) | Right Heart Catheterization (RHC) |
| Iron overload | Serum or Plasma Ferritin |
| Hemolytic Component | Reticulocyte Count |
| Haptoglobin Level | |
| Bilirubin Level | |
| Lactate Dehydrogenase Level | |
| Red Blood Cell Aspartate Aminotransferase Level | |
| Brachial Artery Relaxivity | |
| Short Axis Function | |
| Pulmonary Complications | |
| Asthma/airways disease | Lung Function - Diffusion Capacity |
| Lung Function - Lung Volume | |
| Acute chest syndrome | Chest X-ray |
| Sleep Disordered Breathing | |
| Other Complications | |
| Temperature | Body Temperature |
| Liver iron |
Working Group Roster:
WG Members:
|
Elizabeth S. Klings, MD, Chair Boston University School of Medicine Boston, MA |
Carol Blaisdell, MD National Heart, Lung, and Blood Institute (NHLBI) Bethesda, MD |
|
Jon A. Detterich, MD Children's Hospital Los Angeles Los Angeles, CA |
Antonio Guasch, MD Emory University Atlanta, GA |
|
Johnson Haynes, MD University of South Alabama Mobile, AL |
Vandana Sachdev, MD National Heart, Lung, and Blood Institute (NHLBI) Bethesda, MD |
|
John Wood, MD, PhD Children's Hospital Los Angeles Los Angeles, CA |
Sickle Cell Disease Panel Liaison, WG Manager and WG Supervisor:
|
Tracey L. Grant, MS, WG Manager RTI International Statistics and Epidemiology Division Research Triangle Park, NC |
Wayne Huggins, PhD, WG Supervisor RTI International Research Triangle Park, NC |
Sickle Cell Disease Research and Scientific Panel (SRSP) Liaison:
|
James R. Eckman, MD Emory University School of Medicine Atlanta, GA |
Kathryn L. Hassell, MD University of Colorado, Denver Denver, CO |
Supplemental Information includes protocols that the Working Group or Expert Review Panel considered useful and highly relevant to the domain but do not meet the criteria for inclusion in the Toolkit.
Sickle Cell Disease: Cardiovascular, Pulmonary, and Renal Specialty Collection Supplemental Information includes:- Sleep Disordered Breathing 16June2015
- Short Axis Function 20May2015
- Liver Iron-20May2015
- Cell Free Hemoglobin 09July2015
- Brachial Artery Relaxivity-20May2015
- 01 SCD WG1 Specialty Collection Scope
Additional Information:
There is no additional information for this collection.