Protocol - Sleep Apnea - Child

Personnel and Training Required

None

Equipment Needs

None

Requirements

Requirement Category	Required
Major equipment	No
Specialized training	No
Specialized requirements for biospecimen collection	No
Average time of greater than 15 minutes in an unaffected individual	No

Mode of Administration

Self-administered questionnaire

Lifestage

Toddler, Child, Adolescent

Participants

Parents of children ages 2 to 18

Selection Rationale

This protocol was chosen because of its validation in several age groups of children, because of its relative ease of administration, and because it can be used in large cohorts.

Language

English

Standards

Standard	Name	ID	Source
Logical Observation Identifiers Names and Codes (LOINC)	Resp sleep apnea child proto	62637-4	LOINC
Human Phenotype Ontology	Sleep Apnea	HP:0010535	HPO
caDSR Form	PhenX PX091502 - Sleep Apnea Child Protocol	5969663	caDSR Form

Derived Variables

None

Process and Review

Expert Review Panel #6 (ERP 6) reviewed the measures in the Respiratory domain.

Guidance from the ERP 6 includes:

• Link to proprietary protocol provided

Back-compatible: no changes to Data Dictionary

Previous version in Toolkit archive (link)

Protocol Name from Source

The Pediatric Sleep Questionnaire (PSQ), Version 070424

Source

University of Michigan, Pediatric Sleep Questionnaire, Version 070424

General References

Chervin, R. D., Hedger, K., Dillon, J. E., & Pituch, K. J. (2000). Pediatric Sleep Questionnaire (PSQ): Validity and reliability of scales for sleep-disordered breathing, snoring, sleepiness, and behavioral problems. Sleep Medicine, 1, 21-32.

Chervin, R. D., Weatherly, R. A., Garetz, S. L., Ruzicka, D. L., Giordani, B. J., Hodges, E. K., Dillon, J. E., & Guire, K. E. (2007). Pediatric Sleep Questionnaire: Prediction of sleep apnea and outcomes. Archives of Otolaryngology-Head & Neck Surgery, 133, 216-222.

Protocol ID

91502

Variables

Export Variables

Variable Name	Variable ID	Variable Description	dbGaP Mapping
PX091502_Child_ADD_ADHD_Ever
	PX091502470000	Has a health professional ever said that more your child has attention-deficit disorder (ADD) or attention-deficit/hyperactivity disorder (ADHD)? show less	N/A
PX091502_Child_Appear_Sleepy_Day
	PX091502310000	Has a teacher or other supervisor commented more that your child appears sleepy during the day? show less	N/A
PX091502_Child_Bedtime_Difficult_Routines_Rituals
	PX091502250000	At bedtime does your child usually have more difficult routines or rituals, argue a lot, or otherwise behave badly? show less	N/A
PX091502_Child_Birth_Date
	PX091502030000	Date of Child's Birth?	Variable Mapping
PX091502_Child_Breathe_Through_Mouth_Day
	PX091502170100	DOES YOUR CHILD tend to breathe through the more mouth during the day? show less	N/A
PX091502_Child_Caffeinated_Beverage
	PX091502410100	Does your child drink caffeinated beverages more on a typical day (cola, tea, coffee)? show less	N/A
PX091502_Child_Congested_Stuffed_Nose_Night
	PX091502150000	Is your child's nose usually congested or more stuffed at night? show less	N/A
PX091502_Child_Current_Medication_Date_Taken_1
	PX091502500104	Please list any medications your child more currently takes: Dates Taken. show less	N/A
PX091502_Child_Current_Medication_Date_Taken_3
	PX091502500304	Please list any medications your child more currently takes: Dates Taken. show less	N/A
PX091502_Child_Current_Medication_Dose_1
	PX091502500102	Please list any medications your child more currently takes: Size (mg) or amount per dose. show less	N/A
PX091502_Child_Current_Medication_Dose_3
	PX091502500302	Please list any medications your child more currently takes: Size (mg) or amount per dose. show less	N/A
PX091502_Child_Current_Medication_Effect_2
	PX091502500205	Please list any medications your child more currently takes: Effect. show less	N/A
PX091502_Child_Current_Medication_Effect_4
	PX091502500405	Please list any medications your child more currently takes: Effect. show less	N/A
PX091502_Child_Current_Medication_Frequency_Taken_2
	PX091502500203	Please list any medications your child more currently takes: Taken how often? show less	N/A
PX091502_Child_Current_Medication_Frequency_Taken_4
	PX091502500403	Please list any medications your child more currently takes: Taken how often? show less	N/A
PX091502_Child_Current_Medication_Medicine_2
	PX091502500201	Please list any medications your child more currently takes: Medicine. show less	N/A
PX091502_Child_Current_Medication_Medicine_4
	PX091502500401	Please list any medications your child more currently takes: Medicine. show less	N/A
PX091502_Child_Difficulty_Falling_Asleep_Night
	PX091502230000	Does your child have difficulty falling more asleep at night? show less	N/A
PX091502_Child_Easily_Distracted
	PX091502560300	This child often is easily distracted by more extraneous stimuli. show less	N/A
PX091502_Child_Get_Up_Change_A_Lot
	PX091502280000	Does the time at which your child gets up more from bed change a lot from day to day? show less	N/A
PX091502_Child_Grind_Teeth_Night
	PX091502170500	DOES YOUR CHILD grind his or her teeth at night?	N/A
PX091502_Child_Growing_Pains_Worst_Bed
	PX091502110400	DOES YOUR CHILD have growing pains that are more worst in bed? show less	N/A
PX091502_Child_Hard_Wake_Up_Morning
	PX091502330000	Is it hard to wake your child up in the morning?	N/A
PX091502_Child_Headache_More_Once_Month
	PX091502350000	Does your child get a headache at least once more a month, on average? show less	N/A
PX091502_Child_Height_Feet
	PX091502050100	Current Height (feet/inches)?	N/A
PX091502_Child_High_Arched_Palate_Roof_Mouth
	PX091502450000	Has a doctor ever told you that your child more has a high-arched palate (roof of the mouth)? show less	N/A
PX091502_Child_Irresistible_Urge_Nap
	PX091502390000	Has your child felt an irresistible urge to more take a nap at times, forcing him or her to stop what he or she is doing in order to sleep? show less	N/A
PX091502_Child_Legs_Repeated_Kicks_Regular
	PX091502120200	WHILE YOUR CHILD SLEEPS, HAVE YOU SEEN more repeated kicks or jerks of the legs at regular intervals (i.e., about every 20 to 40 seconds)? show less	N/A
PX091502_Child_Long_Term_Medical_Problem_1
	PX091502490100	If your child has long-term medical more problems, please list the three you think are most significant. show less	N/A
PX091502_Child_Long_Term_Medical_Problem_3
	PX091502490300	If your child has long-term medical more problems, please list the three you think are most significant. show less	N/A
PX091502_Child_Neither_Awake_Asleep_Ever
	PX091502220100	Has your child ever been moving or behaving, more at night, in a way that made you think your child was neither completely awake nor asleep? show less	N/A
PX091502_Child_Nightmare
	PX091502200000	Does your child have nightmares once a week more or more on average? show less	N/A
PX091502_Child_Night_Get_Out_Bed
	PX091502130200	AT NIGHT, DOES YOUR CHILD USUALLY get out of more bed (for any reason)? show less	N/A
PX091502_Child_Night_Urinate_Times
	PX091502130302	If YOUR CHILD USUALLY get out of bed to more urinate, how many times each night, on average? show less	N/A
PX091502_Child_Not_Seem_Listen
	PX091502560100	This child often does not seem to listen more when spoken to directly. show less	N/A
PX091502_Child_On_Go_Driven_By_Motor
	PX091502560500	This child often is on the go or often acts more as if driven by a motor. show less	N/A
PX091502_Child_Overweight
	PX091502440100	Is your child overweight?	N/A
PX091502_Child_Past_Medication_Date_Taken_1
	PX091502510104	Please list any medication your child has more taken in the past if the purpose of the medication was to improve his or her behavior, attention, or sleep: Dates Taken. show less	N/A
PX091502_Child_Past_Medication_Date_Taken_3
	PX091502510304	Please list any medication your child has more taken in the past if the purpose of the medication was to improve his or her behavior, attention, or sleep: Dates Taken. show less	N/A
PX091502_Child_Past_Medication_Dose_1
	PX091502510102	Please list any medication your child has more taken in the past if the purpose of the medication was to improve his or her behavior, attention, or sleep: Size (mg) or amount per dose. show less	N/A
PX091502_Child_Past_Medication_Dose_3
	PX091502510302	Please list any medication your child has more taken in the past if the purpose of the medication was to improve his or her behavior, attention, or sleep: Size (mg) or amount per dose. show less	N/A
PX091502_Child_Past_Medication_Effect_2
	PX091502510205	Please list any medication your child has more taken in the past if the purpose of the medication was to improve his or her behavior, attention, or sleep: Effect. show less	N/A
PX091502_Child_Past_Medication_Effect_4
	PX091502510405	Please list any medication your child has more taken in the past if the purpose of the medication was to improve his or her behavior, attention, or sleep: Effect. show less	N/A
PX091502_Child_Past_Medication_Frequency_Taken_2
	PX091502510203	Please list any medication your child has more taken in the past if the purpose of the medication was to improve his or her behavior, attention, or sleep: Taken how often? show less	N/A
PX091502_Child_Past_Medication_Frequency_Taken_4
	PX091502510403	Please list any medication your child has more taken in the past if the purpose of the medication was to improve his or her behavior, attention, or sleep: Taken how often? show less	N/A
PX091502_Child_Past_Medication_Medicine_2
	PX091502510201	Please list any medication your child has more taken in the past if the purpose of the medication was to improve his or her behavior, attention, or sleep: Medicine. show less	N/A
PX091502_Child_Past_Medication_Medicine_4
	PX091502510401	Please list any medication your child has more taken in the past if the purpose of the medication was to improve his or her behavior, attention, or sleep: Medicine. show less	N/A
PX091502_Child_Psychological_Psychiatric_Behavior_Diagnosis_2
	PX091502530201	Please list any psychological, psychiatric, more emotional, or behavioral problems diagnosed or suspected by a physician in your child. show less	N/A
PX091502_Child_Psychological_Psychiatric_Behavior_Diagnosis_4
	PX091502530401	Please list any psychological, psychiatric, more emotional, or behavioral problems diagnosed or suspected by a physician in your child. show less	N/A
PX091502_Child_Psychological_Psychiatric_Behavior_Start_Date_1
	PX091502530102	The date the psychological, psychiatric, more emotional, or behavioral problem started? show less	N/A
PX091502_Child_Psychological_Psychiatric_Behavior_Start_Date_3
	PX091502530302	The date the psychological, psychiatric, more emotional, or behavioral problem started? show less	N/A
PX091502_Child_Psychological_Psychiatric_Behavior_Still_Present_2
	PX091502530203	Is the psychological, psychiatric, more emotional, or behavioral problem still present? show less	N/A
PX091502_Child_Psychological_Psychiatric_Behavior_Still_Present_4
	PX091502530403	Is the psychological, psychiatric, more emotional, or behavioral problem still present? show less	N/A
PX091502_Child_Racial_Ethnic
	PX091502080000	Racial/Ethnic Background of your Child?	N/A
PX091502_Child_Restless_Legs_In_Bed
	PX091502110200	DOES YOUR CHILD describe restlessness of the more legs when in bed? show less	Variable Mapping
PX091502_Child_Sleepiness_Problem_Day
	PX091502300200	DOES YOUR CHILD have a problem with more sleepiness during the day? show less	N/A
PX091502_Child_Sleep_Disorder_Diagnosis_2
	PX091502520201	Please list any sleep disorders diagnosed or more suspected by a physician in your child. show less	N/A
PX091502_Child_Sleep_Disorder_Diagnosis_4
	PX091502520401	Please list any sleep disorders diagnosed or more suspected by a physician in your child. show less	N/A
PX091502_Child_Sleep_Disorder_Start_Date_1
	PX091502520102	The date the sleep disorder started?	N/A
PX091502_Child_Sleep_Disorder_Start_Date_3
	PX091502520302	The date the sleep disorder started?	N/A
PX091502_Child_Sleep_Disorder_Still_Present_2
	PX091502520203	Is the sleep disorder still present?	N/A
PX091502_Child_Sleep_Disorder_Still_Present_4
	PX091502520403	Is the sleep disorder still present?	N/A
PX091502_Child_Sleep_Walking
	PX091502180000	Has your child ever walked during sleep more (sleep walking)? show less	N/A
PX091502_Child_Snore_Loudly
	PX091502090400	WHILE SLEEPING, DOES YOUR CHILD snore loudly?	N/A
PX091502_Child_Snore_More_Half_Time
	PX091502090200	WHILE SLEEPING, DOES YOUR CHILD snore more more than half the time? show less	N/A
PX091502_Child_Stop_Breathing_Night_Description
	PX091502100102	HAVE YOU EVER been concerned about your more child's breathing during sleep? show less	N/A
PX091502_Child_Sudden_Weak_Legs_Ever
	PX091502380300	HAS YOUR CHILD EVER become suddenly weak in more the legs, or anywhere else, after laughing or being surprised by something? show less	N/A
PX091502_Child_Surgery_Ever
	PX091502380201	HAS YOUR CHILD EVER had surgery?	Variable Mapping
PX091502_Child_Tonsils_Remove
	PX091502370100	Does your child still have tonsils?	N/A
PX091502_Child_Tonsils_Remove_Reason
	PX091502370300	Why were they removed?	Variable Mapping
PX091502_Child_Trouble_Back_Asleep_Morning
	PX091502260400	DOES YOUR CHILD wake up early in the morning more and have difficulty going back to sleep? show less	N/A
PX091502_Child_Trouble_Struggle_Breathing
	PX091502090600	WHILE SLEEPING, DOES YOUR CHILD have trouble more breathing, or struggle to breathe? show less	N/A
PX091502_Child_Upset_Stomach_Night
	PX091502170300	DOES YOUR CHILD complain of an upset stomach more at night? show less	N/A
PX091502_Child_Use_Cigarette_Tobacco_List
	PX091502430200	Which tobacco products does your child use?	N/A
PX091502_Child_Use_Recreational_Drug
	PX091502420100	Does your child use any recreational drugs?	N/A
PX091502_Child_Use_Recreational_Drug_Frequency
	PX091502420300	How often does your child use recreational drugs?	N/A
PX091502_Child_Wake_Multiple_Times_Night
	PX091502260200	DOES YOUR CHILD wake up more than twice a more night on average? show less	N/A
PX091502_Child_Wake_Snoring_Sound_Ever
	PX091502100400	HAVE YOU EVER seen your child wake up with a more snorting sound? show less	N/A
PX091502_Child_Weight_Pound
	PX091502060000	Current Weight (pound)?	N/A
PX091502_Interview_Date
	PX091502010000	Today's Date?	Variable Mapping
PX091502_Sleep_Behavior_Disorder_Condition_1
	PX091502540102	Please list any sleep or behavior disorders more diagnosed or suspected in your child's brothers, sisters, or parents: Condition. show less	N/A
PX091502_Sleep_Behavior_Disorder_Condition_2
	PX091502540202	Please list any sleep or behavior disorders more diagnosed or suspected in your child's brothers, sisters, or parents: Condition. show less	N/A
PX091502_Sleep_Behavior_Disorder_Condition_3
	PX091502540302	Please list any sleep or behavior disorders more diagnosed or suspected in your child's brothers, sisters, or parents: Condition. show less	N/A
PX091502_Time_Child_Bed_Weekend_Vacation
	PX091502290200	WHAT TIME DOES YOUR CHILD USUALLY go to bed more on the weekend or vacation? show less	N/A
PX091502_Time_Child_Get_Up_Weekend_Vacation
	PX091502290400	WHAT TIME DOES YOUR CHILD USUALLY get out of more bed on weekend or vacation mornings? show less	N/A

Respiratory

Measure Name

Sleep Apnea

Release Date

January 29, 2010

Definition

This measure identifies people with sleep apnea.

Purpose

Sleep apnea is a serious, potentially life-threatening condition that is far more common than is generally understood. Sleep apnea occurs in all age groups and both genders.

Keywords

Respiratory, snoring, Berlin Questionnaire, Respiratory, Pediatric Sleep Questionnaire, PSQ, proprietary

Measure Protocols

Protocol ID	Protocol Name
91501	Sleep Apnea - Adult
91502	Sleep Apnea - Child