PhenX Toolkit: Toolkit

Essential Protocols

Total Protocols in My Toolkit: 18
	Hydroxyurea Adherence - Prospective Studies THromboprophylaxis In Sickle cell disease with central venous catheters (THIS-1) Remove
	Acute Chest Syndrome - Pregnancy Malinowski AK, et al. Distinct maternal and fetal pregnancy outcomes in women with sickle cell disease can be predicted using routine clinical and laboratory data. Br J Haematol. 2021 Sickle Cell Disease Obstetric Multi-Disciplinary Care Programme: Prospective Multi-Centre Cohort Study (SCOB-II). Check all Chest X-ray Add to Toolkit Remove
	Prophylactic Transfusion during Pregnancy Malinowski AK, et al. Prophylactic transfusion for pregnant women with sickle cell disease: a systematic review and meta-analysis. Blood. 2015 Oakley LL, et al. Serial prophylactic exchange blood transfusion in pregnant women with sickle cell disease (TAPS-2): study protocol for a randomised controlled feasibility trial. Trials. 2020 Remove
	Thromboprophylaxis Prophylactic Anticoagulation and central Venous access device-related thromboembolism In adult Sickle cell patients (PAVIS) Remove
	Thrombosis - Catheter-related Prophylactic Anticoagulation and central Venous access device-related thromboembolism In adult Sickle cell patients (PAVIS) Remove
	Thrombosis - Venous - non-catheter-related Cure Sickle Cell Initiative (CureSCi), F2909 Medical History Core Form, SCD Version 1.0 Check all Current Age Add to Toolkit Remove
	Transfusion Indications Silent Cerebral Infarct Transfusion (SIT) Trial, S31r4 Transfusion Form Check all Current Age Hemoglobin Characterization Add to Toolkit Remove
	Transfusion Reactions Silent Cerebral Infarct Transfusion (SIT) Trial, S32r0 Transfusion Reaction Form Check all Current Age Add to Toolkit Remove
	Ethnicity and Race U.S. Census Bureau, Census 2020, Questionnaire Remove
	Educational Attainment - Individual National Health and Nutrition Examination Survey (NHANES), Demographics Module, 2019-2020 Remove
	Current Marital Status Behavioral Risk Factor Surveillance System (BRFSS), Core Section 8: Demographics, 2018 Check all Current Age Add to Toolkit Remove
	Impairment - Adolescent The Columbia Impairment Scale (CIS) Remove
	Impairment - Adult The World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) Remove
	Broad Psychopathology - Adult The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) Check all Current Age Add to Toolkit Remove
	Broad Psychopathology - Child The Strengths and Difficulties Questionnaire (SDQ) Check all Current Age Add to Toolkit Remove
	Child-Reported Parental Education Attainment National Longitudinal Study on Adolescent Health (Add Health), 1995 Check all Current Age Add to Toolkit Remove
	Current Age National Health and Nutrition Examination Survey (NHANES), 2019-2020 Remove
	Annual Household Family Income and Number of People Supported All of Us Research Program, Participant Provided Information (PPI), 2017 and Hispanic Community Health Study / Study of Latinos (HCHS/SOL) Check all Current Age Household Roster-Relationships Add to Toolkit Remove
Total Protocols in My Toolkit: 18

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

My Toolkit