Protocol - Sickle Cell Disease Responses to Stress - Youth

Description

The Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC) is a self-reported instrument that includes eight sickle cell disease stressors and 57 questions that capture voluntary (coping) and involuntary (automatic) stress responses. The RSQ-SC contains items to measure three types of coping and two types of involuntary stress responses. The measure thus yields five factors: primary control coping, secondary control coping, disengagement coping, involuntary engagement, and involuntary disengagement.

Specific Instructions

Each item is scored on a 4-point Likert-style scale (1 = “Not at all” ; 4 = “Very” or “A lot”) that indicates the degree/frequency the item was experienced or employed by the individual. Proportion scores can then be created for each factor, thus controlling for individual differences in rates of endorsing items. Detailed scoring information can be obtained by emailing stressandcopinglab@vanderbilt.edu.

Availability

This protocol is freely available; permission not required for use.

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Protocol

	ID: ______________
	Date: _____________

RESPONSES TO STRESS - [SC] (SR-C)

This is a list of things about having sickle cell disease that children and teenagers sometimes find stressful or a problem to deal with. Please circle the number indicating how stressful the following things have been for you in the past 6 months.

	Not at all	A Little	Somewhat	Very
a. Not being able to do the things that other kids can do or are allowed to do	1	2	3	4
b. Having to go to the hospital or clinic so often	1	2	3	4
c. Missing school days or falling behind in school work	1	2	3	4
d. Concerns about my family and friends	1	2	3	4
e. Feeling confused about what sickle cell disease is and why I got it	1	2	3	4
f. Not understanding what doctors tell me about sickle cell disease	1	2	3	4
g. Having Sickle Cell Pain crises	1	2	3	4
h. Concerns about the future	1	2	3	4
i. Other:____________________________________	1	2	3	4
j.	1	2	3	4
k.	1	2	3	4
l.	1	2	3	4

Circle the number that shows how much control you generally think you have over these problems.
1	2	3	4
None	A little	Some	A lot

Below is a list of things that children and teenagers sometimes do, think, or feel when they are dealing with sickle cell disease. Everyone deals with problems in their own way - some people do a lot of the things on this list or have a bunch of feelings, other people just do or think a few of these things.

Think of all the stressful parts of having sickle cell disease that you indicated above. For each item below, circle one number from 1 (not at all) to 4 (a lot) that shows how much you do or feel these things when you have the problems with sickle cell like the ones you indicated above. Please let us know about everything you do, think, and feel, even if you don’t think it helps make things better.

How much do you do this?

WHEN DEALING WITH THE STRESS OF SICKLE CELL DISEASE:

Not at all

A Little

Some

A lot

I try not to feel anything.

When dealing with the stress of having sickle cell disease, I feel sick to my stomach or get headaches.

I try to think of different ways to change or fix the situation.
Write one plan you thought of: _____________________________________

When faced with the stress of having sickle cell disease, I don’t feel anything at all, it's like I have no feelings.

I wish that I were stronger and less sensitive so that things would be different.

I keep remembering what happened with sickle cell disease or can’t stop thinking about what might happen.

I let someone or something know how I feel. (remember to circle a number.) ---->
Check all you talked to:

[ ] Parent	[ ] Friend	[ ] Brother/Sister
[ ] Pet	[ ] Clergy Member	[ ] Teacher
[ ] God	[ ] Stuffed Animal	[ ] Other family member
[ ] None of these

I decide I’m okay the way I am, even though I’m not perfect.

When I’m around other people I act like I do not have sickle cell disease.

10.

I just have to get away from everything when I am dealing with the stress of having sickle cell disease.

11.

I deal with the stress of having sickle cell disease by wishing it would just go away, that everything would work itself out.

12.

I get really jumpy when I am dealing with the stress of having sickle cell disease.

13.

I realize that I just have to live with things the way they are.

14.

When I am dealing with the stress of having sickle cell disease, I just can’t be near anything that reminds me of sickle cell.

15.

I try not to think about it, to forget all about it.

16.

When I am dealing with the stress of having sickle cell disease, I really don’t know what I feel.

17.

I ask other people of things for help or for ideas about how to make things better (remember to circle a number.) ---->
Check all you talked to:

[ ] Parent	[ ] Friend	[ ] Brother/Sister
[ ] Pet	[ ] Clergy Member	[ ] Teacher
[ ] God	[ ] Stuffed Animal	[ ] Other family member
[ ] None of these

18.

When I am trying to sleep, I can’t stop thinking about the stressful aspects of having sickle cell disease or I have bad dreams about having sickle cell disease.

19.

I tell myself that I can get through this, or that I will be okay.

20.

I let my feelings out. (remember to circle a number.)
I do this by: (Check all that you did.)

[ ] Writing in my journal/diary	[ ] Drawing/painting
[ ] Complaining to let off steam	[ ] Being sarcastic/making fun
[ ] Listening to music	[ ] Punching a pillow
[ ] Exercising	[ ] Yelling
[ ] Crying	[ ] None of these

21.

I get help from other people or things when I’m trying to figure out how to deal with my feelings. (remember to circle a number.) ---->
Check all you went to:

[ ] Parent	[ ] Friend	[ ] Brother/Sister
[ ] Pet	[ ] Clergy Member	[ ] Teacher
[ ] God	[ ] Stuffed Animal	[ ] Other family member
[ ] None of these

22.

I just can’t get myself to face the stress of having sickle cell disease.

23.

I wish that someone would just come and take away the stressful aspects of having sickle cell disease.

You’re half done. Before you keep working, look back at the first page so you remember the aspects of having sickle cell disease that have been stressful for you lately. Remember to answer the questions below thinking about these things.

How much do you do this?

WHEN DEALING WITH THE STRESS OF SICKLE CELL DISEASE:

Not at all

A Little

Some

A lot

24.

I do something to try to fix the stressful parts of having sickle cell disease.
Write one thing you did:____________________________

25.

Thoughts about having sickle cell disease just pop into my head.

26.

When I am dealing with the stress of having sickle cell disease, I feel it in my body. (remember to circle a number.) ---->
Check all that happen:

[ ] My heart races	[ ] My breathing speeds up
[ ] I feel hot or sweaty	[ ] My muscles get tight
[ ] None of these

27.

I try to stay away from people and things that make me feel upset or remind me of the stressful aspects of having sickle cell disease.

28.

I don’t feel like myself when I am dealing with the stress of having sickle cell disease, it’s like I am far away from everything.

29.

I just take things as they are; I go with the flow.

30.

I think about happy things to take my mind off the stressful parts of having sickle cell disease or how I’m feeling.

31.

When something stressful happens related to having sickle cell disease, I can’t stop thinking about how I am feeling.

32.

I get sympathy, understanding, or support from someone. (remember to circle a number.) ---->
Check all you went to:

[ ] Parent	[ ] Friend	[ ] Brother/Sister
[ ] Pet	[ ] Clergy Member	[ ] Teacher
[ ] God	[ ] Stuffed Animal	[ ] Other family member
[ ] None of these

33.

When something stressful happens related to having sickle cell disease, I can’t always control what I do. (remember to circle a number.) ---->
Check all that happen:
[ ] I can’t stop eating
[ ] I can’t stop talking
[ ] I do dangerous things
[ ] I have to keep fixing/checking things
[ ] None of these

34.

I tell myself that things could be worse.

35.

My mind just goes blank when something stressful happens related to having sickle cell disease, I can’t think at all.

36.

I tell myself that it doesn’t matter, that it isn’t a big deal.

37.

When I am faced with the stressful parts of having sickle cell disease, right away I feel really: (remember to circle a number.) ---->
Check all that you feel:

[ ] Angry	[ ] Sad	[ ] None of these
[ ] Worried/anxious	[ ] Scared

38.

It’s really hard for me to concentrate or pay attention when something stressful happens related to having sickle cell disease.

39.

I think about the things I’m learning from having sickle cell disease, or something good that will come from it.

How much do you do this?

WHEN DEALING WITH THE STRESS OF SICKLE CELL DISEASE:

Not at all

A Little

Some

A lot

40.

After something stressful happens related to having sickle cell disease, I can’t stop thinking about what I did or said.

41.

When stressful parts of having sickle cell disease happen, I say to myself, “This isn’t real.”

42.

When I’m dealing with the stressful parts of having sickle cell disease, I end up just lying around or sleeping a lot.

43.

I keep my mind off stressful parts of having sickle cell disease by: (remember to circle a number.) ---->
Check all that you do:

[ ] Exercising	[ ] Seeing friends
[ ] Watching TV	[ ] Playing video games
[ ] Doing a hobby	[ ] Listening to music
[ ] None of these

44.

When something stressful happens related to having sickle cell disease, I get upset by things that don’t usually bother me.

45.

I do something to calm myself down when I’m dealing with the stress of having sickle cell disease. (remember to circle a number.) ---->
Check all that you do:

[ ] Take deep breaths	[ ] Pray	[ ] Walk
[ ] Listen to music	[ ] Take a break	[ ] Meditate
[ ] None of these

46.

I just freeze when I am dealing with stressful parts of having sickle cell disease, I can’t do anything.

47.

When stressful things happen related to having sickle cell disease I sometimes act without thinking.

48.

I keep my feelings under control when I have to, then let them out when they won’t make things worse.

49.

When something stressful happens related to having sickle cell disease, I can’t seem to get around to doing things I’m supposed to do.

50.

I tell myself that everything will be all right.

51.

When something stressful happens related to having sickle cell disease, I can’t stop thinking about why this is happening.

52.

I think of ways to laugh about it so that it won’t seem so bad.

53.

My thoughts start racing when I am faced with the stressful parts of having sickle cell disease.

54.

I imagine something really fun or exciting happening in my life.

55.

When something stressful happens related to having sickle cell disease, I can get so upset that I can’t remember what happened or what I did.

56.

I try to believe that it never happened.

57.

When I am dealing with the stress of having sickle cell disease, sometimes I can’t control what I do or say.

Personnel and Training Required

None

Equipment Needs

None

Requirements

Requirement Category	Required
Major equipment	No
Specialized training	No
Specialized requirements for biospecimen collection	No
Average time of greater than 15 minutes in an unaffected individual	No

Mode of Administration

Self-administered questionnaire

Lifestage

Child, Adolescent

Participants

Children and adolescents with sickle cell disease, ages 9-19

Selection Rationale

The Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC) is a validated, reliable, self-administered questionnaire that has been used to assess coping in children and adolescents with sickle cell disease.

Language

English, Other languages available at source

Standards

Standard	Name	ID	Source
caDSR Form	Px870701 Responses Stress Sickle Cell Disease Youth	14860541	caDSR Form

Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC)

Source

Connor-Smith, J. K., Compas, B. E., Wadsworth, M. E., Thomsen, A. H., & Saltzman, H. (2000). Responses to stress in adolescence: measurement of coping and involuntary stress responses. Journal of Consulting and Clinical Psychology, 68(6), 976-992.

The Reponses to Stress Questionnaire can be downloaded from the Stress and Coping Research Lab website hosted by Vanderbilt University (https://my.vanderbilt.edu/stressandcoping/).

General References

Prussien, K. V., DeBaun, M. R., Yarboi, J., Bemis, H., McNally, C., Williams, E., & Compas, B. E. (2018). Cognitive function, coping, and depressive symptoms in children and adolescents with sickle cell disease. Journal of Pediatric Psychology, 43(5), 543-551. doi:10.1093/jpepsy/jsx141

Prussien, K. V., Siciliano, R. E., Ciriegio, A. E., Lee, C. A., DeBaun, M. R., Jordan, L. C., & Compas, B. E. (2021). Preliminary study of coping, perceived control, and depressive symptoms in youth with sickle cell anemia. Journal of Developmental and Behavioral Pediatrics, 42(6), 485-489. doi:10.1097/DBP.0000000000000922

Protocol ID

870701

Variables

Export Variables

Variable Name	Variable ID	Variable Description	dbGaP Mapping
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Around_Other_People_Act_Not_Have
	PX870701190000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When I'm around other people I act like I do not have sickle cell disease." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Ask_Other_People_Things_Make_Better
	PX870701270000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I ask other people of things for help or for ideas about how to make things better (remember to circle a number.) ---->" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Concerns_Family_Friends
	PX870701040000	"Please circle the number indicating how more stressful the following things have been for you in the past 6 months. Concerns about my family and friends" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Concerns_Future
	PX870701080000	"Please circle the number indicating how more stressful the following things have been for you in the past 6 months. Concerns about the future" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Concerns_Future_Other_Write
	PX870701090100	"Please circle the number indicating how more stressful the following things have been for you in the past 6 months. Other (Specify): " show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Dealing_Feel_Body_Check_All
	PX870701360100	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When I am dealing with the stress of having sickle cell disease, I feel it in my body. Check all that happen:" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Dealing_With_Cant_Control_What_Do_Say
	PX870701670000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When I am dealing with the stress of having sickle cell disease, sometimes I can't control what I do or say." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Deal_Wishing_Go_Away_Work_Itself
	PX870701210000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I deal with the stress of having sickle cell disease by wishing it would just go away, that everything would work itself out." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Dont_Feel_Anything
	PX870701140000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When faced with the stress of having sickle cell disease, I don't feel anything at all, it's like I have no feelings." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Dont_Feel_Myself_Away_Everything
	PX870701380000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I don't feel like myself when I am dealing with the stress of having sickle cell disease, it's like I am far away from everything." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Do_Something_Calm_Myself_Down_Check_All
	PX870701550100	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I do something to calm myself down when I'm dealing with the stress of having sickle cell disease. Check all that you do:" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Do_Something_Fix_Stressful_Parts
	PX870701340000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I do something to try to fix the stressful parts of having sickle cell disease." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Faced_Stressful_Parts_Feel_Really_Check_All
	PX870701470100	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When I am faced with the stressful parts of having sickle cell disease, right away I feel really: Check all that you feel:" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Get_help_Other_People_Figure_Out_Deal_With
	PX870701310000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I get help from other people or things when I'm trying to figure out how to deal with my feelings. (remember to circle a number.) ---->" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Get_Myself_Face
	PX870701320000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I just can't get myself to face the stress of having sickle cell disease." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Go_To_Hospital_Often
	PX870701020000	"Please circle the number indicating how more stressful the following things have been for you in the past 6 months. Having to go to the hospital or clinic so often" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Keep_My_Mind_Off_Stressful_Parts
	PX870701530000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I keep my mind off stressful parts of having sickle cell disease by: (remember to circle a number.) ---->" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Let_Feelings_Out
	PX870701300000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I let my feelings out. (remember to circle a number.)" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Let_Someone_Something_Know_Feel_Talk_To
	PX870701170100	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I let someone or something know how I feel. Check all you talked to:" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Not_Understanding_Doctors_Tell
	PX870701060000	"Please circle the number indicating how more stressful the following things have been for you in the past 6 months. Not understanding what doctors tell me about sickle cell disease" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Realize_Live_Things_Way_They_Are
	PX870701230000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I realize that I just have to live with things the way they are." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Remembering_What_Happened
	PX870701160000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I keep remembering what happened with sickle cell disease or can't stop thinking about what might happen." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Something_Stressful_Happens_Related_Always_Control_What_Do
	PX870701430000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When something stressful happens related to having sickle cell disease, I can't always control what I do. (remember to circle a number.) ---->" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Something_Stressful_Happens_Related_Cant_Get_Around_Doing_Things
	PX870701590000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When something stressful happens related to having sickle cell disease, I can't seem to get around to doing things I'm supposed to do." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Something_Stressful_Happens_Related_Cant_Stop_Thinking_Why
	PX870701610000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When something stressful happens related to having sickle cell disease, I can't stop thinking about why this is happening." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Something_Stressful_Happens_Related_Get_Upset
	PX870701540000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When something stressful happens related to having sickle cell disease, I get upset by things that don't usually bother me." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Something_Stressful_Happens_Related_Get_Upset_Cant_Remember_What_Happened
	PX870701650000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When something stressful happens related to having sickle cell disease, I can get so upset that I can't remember what happened or what I did." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Stressful_Parts_Happen_Say_Myself_Isnt_Real
	PX870701510000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When stressful parts of having sickle cell disease happen, I say to myself, "This isn't real."" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Sympathy_Understanding_Support_Someone
	PX870701420000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I get sympathy, understanding, or support from someone. (remember to circle a number.) ---->" show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Tell_Myself_Doesnt_Matter_Not_Big_Deal
	PX870701460000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I tell myself that it doesn't matter, that it isn't a big deal." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Tell_Myself_Things_Worse
	PX870701440000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I tell myself that things could be worse." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Things_Happen_Related_Sometimes_Act_Without_Thinking
	PX870701570000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When stressful things happen related to having sickle cell disease I sometimes act without thinking." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Think_About_Things_Learning_Something_Good_Will_Come
	PX870701490000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I think about the things I'm learning from having sickle cell disease, or something good that will come from it." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Think_Different_Ways_Change_Fix_Situation
	PX870701130000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I try to think of different ways to change or fix the situation." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Think_Happy_Things_Mind_Off
	PX870701400000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I think about happy things to take my mind off the stressful parts of having sickle cell disease or how I'm feeling." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Thoughts_Pop_Head
	PX870701350000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: Thoughts about having sickle cell disease just pop into my head." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Thoughts_Start_Racing_Faced_Stressful_Parts
	PX870701630000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: My thoughts start racing when I am faced with the stressful parts of having sickle cell disease." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Trying_Sleep_Cant_Stop_Thinking_Bad_Dreams
	PX870701280000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: When I am trying to sleep, I can't stop thinking about the stressful aspects of having sickle cell disease or I have bad dreams about having sickle cell disease." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Try_Not_Feel_Anything
	PX870701110000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I try not to feel anything." show less	N/A
PX870701_Responses_Stress_Sickle_Cell_Disease_Youth_Try_Not_Think_About
	PX870701250000	"WHEN DEALING WITH THE STRESS OF SICKLE CELL more DISEASE: I try not to think about it, to forget all about it." show less	N/A

SCD Psychosocial and Social Determinants of Health

Measure Name

Sickle Cell Disease Responses to Stress

Release Date

February 6, 2023

Definition

Responses to stress include voluntary coping attempts and involuntary reactions influenced by temperament and conditioned behavior.

Purpose

Many chronic conditions, including sickle cell disease, involve significant stress. Individual differences in responses to stress and coping may influence an individual’s ability to manage disease burden and a greater understanding of these constructs may help inform interventions.

Keywords

stress, coping, temperament, behavior, emotion, sickle cell disease, SCD, Psychosocial

Measure Protocols

Protocol ID	Protocol Name
870701	Sickle Cell Disease Responses to Stress - Youth
870702	Sickle Cell Disease Responses to Stress - Parent Report

Protocol - Sickle Cell Disease Responses to Stress - Youth

Related Protocols:

Essential Protocols:

Description

Specific Instructions

Availability

Protocol

Personnel and Training Required

Equipment Needs

Requirements

Mode of Administration

Lifestage

Participants

Selection Rationale

Language

Standards

Derived Variables

Process and Review

Protocol Name from Source

Source

General References

Protocol ID

Variables

Measure Name

Release Date

Definition

Purpose

Keywords

Measure Protocols