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Protocol - Personal and Family History of Psoriasis

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Description

The Self Evaluation plus Medication Survey is a self-administered instrument which was developed from the questionnaires used in the Collaborative Association Study of Psoriasis (CASP), which is a Genetic Association Information Network (GAIN) genome-wide association study (GWAS). The Self Evaluation plus Medication Survey collects information on individuals with psoriasis and controls, and their family history of psoriasis and other autoimmune diseases. Additionally, for individuals with psoriasis the questionnaire collects information regarding their symptoms and medication use and its effectiveness.

Specific Instructions

The PhenX Skin, Bone, Muscle and Joint Working Group (WG) recommends that investigators provide participants with an informed consent form which allows future contact for physician validation of their diagnosis and to update information on their health status. Immediately following the alcohol and tobacco questions, the Self Evaluation plus Medication Survey asked questions regarding the respondents weight and height. These questions have been deleted. The Working Group recommends that this information be obtained via the PhenX measures titled Weight and Height, respectively. These measures are located in the PhenX Toolkit, under the Anthropometrics domain.

Availability

This protocol is freely available; permission not required for use.

Protocol

Psoriasis Self Evaluation plus Medication Survey

If affected with psoriasis:

1. Age at which symptoms appeared: _______

2. Age at which psoriasis was diagnosed by a physician: _______

3. Is the physician who diagnosed you a dermatologist:

[ ] Yes

[ ] No

Name of your current dermatologist: _________________________________________

4. If affected with arthritis:

4a. Age at which symptoms appeared: _______

4b. Age at which arthritis was diagnosed by a physician: _______

4c. Have you been told by a rheumatologist that you have psoriatic arthritis?

[ ] Yes

[ ] No

5. Have you been diagnosed with Crohns disease or another inflammatory bowel disorder?

[ ] Yes

[ ] No

[ ] Explanation:____________________________________________________
              (diagnosis if known, date of diagnosis, doctor who made the diagnosis)

6. Have you been diagnosed with any type of autoimmune disease (lupus, scleroderma, etc.)?

[ ] Yes

[ ] No

[ ] Explanation:____________________________________________________
              (diagnosis if known, date of diagnosis, doctor who made the diagnosis)

7. Do you have any blood relatives affected with psoriasis?

[ ] Yes

[ ] No

7a. If yes, relationship(s) ___________________________________________

____________________________________________________________________________

8. Do you have any blood relatives with inflammatory bowel disease?

[ ] Yes

[ ] No

[ ] Explanation:_____________________________________________________
              (for each type of relative, please give presumed diagnosis)

9. Do you have any blood relatives with any type of autoimmune disease?

[ ] Yes

[ ] No

[ ] Explanation:_____________________________________________________
              (for each type of relative, please give presumed diagnosis)

STOP HERE IF YOU ARE PARTICIPATING AS A CONTROL AND DO NOT HAVE PSORIASIS.

10. How bad is your psoriasis today?

Please answer each of the following three questions by placing an X mark anywhere on the line to show how red, thick, and scaly an average spot of your psoriasis is.

10A. What color is an average spot of your psoriasis?

    No redness             Slight pink             Pink                     Red                  Dark red

Scale

10B. How thick is an average spot of your psoriasis?

    No thickness             Feels firm            Raised                Thick               Very thick

Scale

10C. How scaly is an average spot of your psoriasis?

           No scale             Slight scale          Scaly                  Flaky                 Very flaky

Scale

10D. Has a dermatologist told you that you have pustular psoriasis?

[ ] Yes

[ ] No

10E. Do you have nail psoriasis (pitting of nail surface, thickened or crumbly nails, excessive separation of the tips of the nails from the nail bed, or yellow-orange spotting of the nails)?

[ ] Yes

[ ] No

10e1.If yes, number of fingernails affected _______; number of toenails affected ________.

11. On the drawings below, mark areas of your body affected with psoriasis NOW. Please also write any explanation you wish to add below the drawings.

Body Image

12. On the drawings below, mark areas of your body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Again, feel free to write any explanation you wish to add below the drawings.

Body Image

Psoriasis Medication Usage and Effectiveness History

Alcohol and tobacco usage

13. How many of the following do you smoke per day?

[ ] Cigarettes ______

[ ] Cigars ______

[ ] Pipes ______

14. How many alcoholic drinks do you have per week _________

(one drink = one beer = one glass of wine = one cocktail)

Please mark any of the following medications you are using or have used in the past as appropriate.

Topical medications (creams, lotions etc.)

15. Dovonex®

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments:_______________________________________________________________________

________________________________________________________________________________

16. Anthralin

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments:_______________________________________________________________________

________________________________________________________________________________

17. Coal Tar

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments:_______________________________________________________________________

________________________________________________________________________________

18. Other, please describe: __________________________________________________

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments:_______________________________________________________________________

________________________________________________________________________________

19. Other, please describe: __________________________________________________

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments:_______________________________________________________________________

________________________________________________________________________________

Systemic medications (oral medications)

20. Methotrexate

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments:_______________________________________________________________________

________________________________________________________________________________

21. Soriatane®

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments:_______________________________________________________________________

________________________________________________________________________________

22. Cyclosporine

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments:_______________________________________________________________________

________________________________________________________________________________

23. Other, please describe: __________________________________________________

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments:_______________________________________________________________________

________________________________________________________________________________

Biologicals (injected)

24. Enbrel®

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

25. Humira™

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

26. Raptiva™

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

27. Amevive®

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

28. Remicade®

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

29. Other, please describe: __________________________________________________

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments on any/all biologicals:_____________________________________________________

________________________________________________________________________________

Phototherapy

30. PUVA

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments:_______________________________________________________________________

________________________________________________________________________________

31. UVB

Usage duration: ____ years ____months

Effectiveness on 0–5 scale (0 = not effective, 5 = very effective), please circle one:

0[ ]not effective

1[ ] 

2[ ] 

3[ ] 

4[ ] 

5[ ]very effective

Comments:_______________________________________________________________________

________________________________________________________________________________

Dovonex® a registered trademark, LEO PHARMA A/S Corporation Denmark No.55 Industriparken Ballerup Denmark DK-2750; Soriatane® a registered trademark, Stiefel Laboratories, Inc.; Enbrel® a registered trademark, Immunex Corporation; Humira ™ a registered trademark, Abbott Laboratories; Raptiva™ a registered trademark, Genentech Inc.; Amevive® a registered trademark, Astellas US LLC; Remicade® a registered trademark, Centocor Ortho Biotech Inc.

Personnel and Training Required

None

Equipment Needs

The respondent will need a copy of the questionnaire.

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult, Senior

Participants

Adults, older adults

Selection Rationale

Although there are various psoriasis instruments, the Self Evaluation plus Medication Survey was selected by the PhenX Skin, Bone, Muscle and Joint Working Group because of its development from the Collaborative Association Study of Psoriasis (CASP), its application for individuals with psoriasis and controls, and its ability to obtain information on the presence of specific diseases within their family.

Language

Chinese, English

Standards
StandardNameIDSource
Logical Observation Identifiers Names and Codes (LOINC) Pers fam hx psoriasis proto 62906-3 LOINC
Human Phenotype Ontology Psoriasis HP:0003765 HPO
caDSR Form PhenX PX170501 - Personal And Family History Of Psoriasis 6186591 caDSR Form
Derived Variables

None

Process and Review

Not applicable.

Protocol Name from Source

Collaborative Association Study of Psoriasis (CASP), Self Evaluation plus Medication Survey

Source

The Self Evaluation plus Medication Survey was provided by the Psoriasis Genetics Laboratory, Department of Dermatology, University of Michigan Medical School, Ann Arbor, MI. Of note, the questions in this survey have been renumbered 1–31.

General References

Nair, R. P., Stuart, P. E., Nistor, I., Hiremagalore, R., Chia, N. V. C., Jenisch, S., Weichenthal, M., Abeasis, G. R., Lim, H. W., Christophers, E., Voorhees, J. J., & Elder, J. T. (2006). Sequence and haplotype analysis supports HLA-C as the Psoriasis Susceptibility 1 gene. American Journal of Human Genetics, 78, 827–851. PMCID: PMC1474031.

Nair, R. P., Ruether, A., Stuart, P. E., Jenisch, S., Tejasvi, T., Hiremagalore, R., Schreiber, S., Kabelitz, D., Lim, H. W., Voorhees, J. J., Christophers, E., Elder, J. T., & Weichenthal, M. (2008). Polymorphisms of the IL12B and IL23R genes are associated with psoriasis. Journal of Investigative Dermatology, 128, 1653–1661. PMCID: PMC2739284.

Nair, R. P., Callis Duffin, K., Helms, C., Ding, J., Stuart, P. E., Goldgar, D., Gudjonsson, J., Li, Y., Tejasvi, T., Feng, B. J., Ruether, A., Schreiber, S., Weichenthal, M., Gladman, D., Rahman, P., Schrodi, S. J., Prahalad, S., Guthery, S. L., Fischer, J., Liao, W., Kwok, P., Menter, A., Lathrop, G. M., Wise, C., Begovich, A. B., Voorhees, J. J., Elder, J. T., Krueger, G. G., Bowcock, A. M., & Abecasis, G. R. (2009). Genome-wide scan of psoriasis reveals association with IL-23 and NF-kB pathways. Nature Genetics, 41(2), 199–204. PMCID: PMC2745122.

de Cid, R., Riveira-Munoz, E., Zeeuwen, P. L. J. M., Robarge, J., Liao, W., Dannhauser, E. N., Giardina, E., Stuart, P. E., Nair, R. P., Helms, C., Escarams, G., Ballana, E., Martn-Ezquerra, G., den Heijer, M., Kamsteeg, M., Joosten, I., Eichler, E. E., Lzaro, C., Pujol, R. M., Armengol, L., Abecasis, G., Elder, J. T., Novelli, G., Armour, J. A. L., Kwok, P., Bowcock, A., Schalkwijk, J., & Estivill, X. (2009). Deletion of the late cornified envelope (LCE) 3B and 3C genes as a susceptibility factor for psoriasis. Nature Genetics, 41(2), 211-215. NIHMSID: NIHMS213228.

Stuart, P. E., Nair, R. P., Hiremagalore, R., Kullavanijaya, P., Kullavanijaya, P., Tejasvi, T., Lim, H. W., Voorhees, J. J., & Elder, J. T. (2010). Comparison of MHC Class I risk haplotypes in Thai and Caucasian psoriatics reveals locus heterogeneity at PSORS1. Tissue Antigens, July 1 [E-pub ahead of print]. NIHMSID: NIHMS215411

Stuart, P. E., Nair, R. P., Ellinghaus, E., Ding, J., Tejasvi, T., Gudjonsson, J. E., Li, Y., Weidinger, S., Eberlein, B., Gieger, C., Wichmann, H. E., Kunz, M., Ike, R., Mroweitz, U., Lim, H. W., Voorhees, J. J., Abecasis, G. R., Weichenthal, M., Franke, A., Rahman, P., Gladman, D., & Elder, J. T. (in press). Genome-wide association analysis identifies three psoriasis susceptibility loci. Nature Genetics.

Protocol ID

170501

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX170501_Age_Arthritis_Diagnosed
PX170501040200 Age at which arthritis was diagnosed by a more
physician show less
Variable Mapping
PX170501_Age_Psoriasis_Diagnosed
PX170501020000 Age at which psoriasis was diagnosed by a more
physician show less
N/A
PX170501_Amevive_Usage_Comments
PX170501270400 Biologicals (injected) Amevive usage comments: N/A
PX170501_Amevive_Usage_Duration_Months
PX170501270200 Biologicals (injected) Amevive usage more
duration - months show less
N/A
PX170501_Anthralin_Usage_Duration_Years
PX170501160100 Topical Medications (creams, lotions, etc.) more
Anthralin usage duration - years show less
N/A
PX170501_Anthralin_Usage_Effectiveness
PX170501160300 Topical Medications (creams, lotions, etc.) more
Anthralin usage effectiveness on 0-5 scale (0 = not effective, 5 = very effective), please circle one: show less
N/A
PX170501_Autoimmune_Disease
PX170501060000 Have you been diagnosed with any type of more
autoimmune disease (lupus, scleroderma, etc.)? show less
Variable Mapping
PX170501_Autoimmune_Disease_Explanation_Date_Month
PX170501060201 Have you been diagnosed with any type of more
autoimmune disease (lupus, scleroderma, etc.)? Explanation (diagnosis if known, date of diagnosis, doctor who made the diagnosis) show less
N/A
PX170501_Autoimmune_Disease_Explanation_Date_Year
PX170501060203 Have you been diagnosed with any type of more
autoimmune disease (lupus, scleroderma, etc.)? Explanation (diagnosis if known, date of diagnosis, doctor who made the diagnosis) show less
N/A
PX170501_Autoimmune_Disease_Family_History_Explanation_Relative
PX170501090100 Do you have any blood relatives with any more
type of autoimmune disease? Explanation (for each type of relative, please give presumed diagnosis) show less
N/A
PX170501_Average_Spot_Of_Psoriasis_Color
PX170501100100 What color is an average spot of your more
psoriasis? (To record color of average spots, treat categories as a four point likert scale where No redness = 0 and Dark red = 4. Record marks between categories to the nearest tenth of a point) show less
N/A
PX170501_Average_Spot_Of_Psoriasis_Scaliness
PX170501100300 How scaly is an average spot of your more
psoriasis? (To record scaliness of average spots, treat categories as a four point likert scale where No scale = 0 and Very flaky = 4. Record marks between categories to the nearest tenth of a point) show less
N/A
PX170501_CoalTar_Usage_Duration_Years
PX170501170100 Topical Medications (creams, lotions, etc.) more
Coal tar usage duration - years show less
N/A
PX170501_CoalTar_Usage_Effectiveness
PX170501170300 Topical Medications (creams, lotions, etc.) more
Coal tar usage effectiveness on 0-5 scale (0 = not effective, 5 = very effective), please circle one: show less
N/A
PX170501_Crohns_Disease
PX170501050000 Have you been diagnosed with Crohn's disease more
or another inflammatory bowel disorder? show less
Variable Mapping
PX170501_Crohns_Disease_Explanation_Date_Month
PX170501050201 Have you been diagnosed with Crohn's disease more
or another inflammatory bowel disorder? Explanation: (diagnosis if known, date of diagnosis, doctor who made the diagnosis) show less
N/A
PX170501_Crohns_Disease_Explanation_Date_Year
PX170501050203 Have you been diagnosed with Crohn's disease more
or another inflammatory bowel disorder? Explanation: (diagnosis if known, date of diagnosis, doctor who made the diagnosis) show less
Variable Mapping
PX170501_Current_Dermatologist_Name
PX170501030100 Name of your current dermatologist N/A
PX170501_Cyclosporine_Usage_Duration_Years
PX170501220100 Systemic medications (oral medications) more
Cyclosporine usage duration - years show less
N/A
PX170501_Cyclosporine_Usage_Effectiveness
PX170501220300 Systemic medications (oral medications) more
Cyclosporine usage effectiveness on 0-5 scale (0 = not effective, 5 = very effective), please circle one: show less
N/A
PX170501_Dovonex_Usage_Duration_Years
PX170501150100 Topical Medications (creams, lotions, etc.) more
Dovonex usage duration - years show less
N/A
PX170501_Dovonex_Usage_Effectiveness
PX170501150300 Topical Medications (creams, lotions, etc.) more
Dovonex usage effectiveness on 0-5 scale (0 = not effective, 5 = very effective), please circle one: show less
N/A
PX170501_Enbrel_Usage_Comments
PX170501240400 Biologicals (injected) Enbrel usage comments: N/A
PX170501_Enbrel_Usage_Duration_Months
PX170501240200 Biologicals (injected) Enbrel usage duration more
- months show less
N/A
PX170501_Humira_Usage_Comments
PX170501250400 Biologicals (injected) Humira usage comments: N/A
PX170501_Humira_Usage_Duration_Months
PX170501250200 Biologicals (injected) Humira usage duration more
- months show less
N/A
PX170501_InflammatoryBowelDisease_Family_History
PX170501080000 Do you have any blood relatives with more
inflammatory bowel disease? show less
Variable Mapping
PX170501_InflammatoryBowelDisease_Family_History_Explanation_Diagnosis
PX170501080200 Do you have any blood relatives with more
inflammatory bowel disease? Explanation (for each type of relative, please give presumed diagnosis) show less
N/A
PX170501_Methotrexate_Usage_Duration_Years
PX170501200100 Systemic medications (oral medications) more
Methotrexate usage duration - years show less
N/A
PX170501_Methotrexate_Usage_Effectiveness
PX170501200300 Systemic medications (oral medications) more
Methotrexate usage effectiveness on 0-5 scale (0 = not effective, 5 = very effective), please circle one: show less
N/A
PX170501_Nail_Psoriasis
PX170501100500 Do you have nail psoriasis (pitting of nail more
surface, thickened or crumbly nails, excessive separation of the tips of the nails from the nail bed, or yellow-orange spotting of the nails)? show less
Variable Mapping
PX170501_Nail_Psoriasis_Number_Toenails_Affected
PX170501100700 Do you have nail psoriasis (pitting of nail more
surface, thickened or crumbly nails, excessive separation of the tips of the nails from the nail bed, or yellow-orange spotting of the nails)? If yes, number of toenails affected show less
N/A
PX170501_OtherBiological1Usage_Duration_Years
PX170501290200 Biologicals (injected) Other usage duration more
- years show less
N/A
PX170501_OtherBiological1Usage_Effectiveness
PX170501290400 Biologicals (injected) Other usage more
effectiveness on 0-5 scale (0 = not effective, 5 = very effective), please circle one: show less
N/A
PX170501_OtherSystemic1_Usage_Comments
PX170501230500 Systemic medications (oral medications) more
Other usage comments: show less
N/A
PX170501_OtherSystemic1_Usage_Describe
PX170501230100 Systemic medications (oral medications) more
Other, please describe show less
N/A
PX170501_OtherSystemic1_Usage_Duration_Months
PX170501230300 Systemic medications (oral medications) more
Other usage duration - months show less
N/A
PX170501_OtherTopical1_Usage_Comments
PX170501180500 Topical Medications (creams, lotions, etc.) more
Other usage comments: show less
N/A
PX170501_OtherTopical1_Usage_Describe
PX170501180100 Topical Medications (creams, lotions, etc.) more
Other , please describe show less
N/A
PX170501_OtherTopical1_Usage_Duration_Months
PX170501180300 Topical Medications (creams, lotions, etc.) more
Other usage duration - months show less
N/A
PX170501_OtherTopical2_Usage_Duration_Years
PX170501190200 Topical Medications (creams, lotions, etc.) more
Other usage duration - years show less
N/A
PX170501_OtherTopical2_Usage_Effectiveness
PX170501190400 Topical Medications (creams, lotions, etc.) more
Other usage effectiveness on 0-5 scale (0 = not effective, 5 = very effective), please circle one: show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_BackNeck
PX170501110400 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Back of neck show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_CenterLowerBack
PX170501111700 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Center of lower back show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_CenterUpperBack
PX170501111000 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Center of upper back show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_Comments
PX170501114900 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Please also write any explanation you wish to add below the drawings. show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontLeftFoot
PX170501113300 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of left foot show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontLeftHand
PX170501114500 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of left hand show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontLowerLeftArm
PX170501114300 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of lower left arm show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontLowerLeftLeg
PX170501113100 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of lower left leg show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontLowerRightArm
PX170501114100 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of lower right arm show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontLowerRightLeg
PX170501112900 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of lower right leg show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontRightFoot
PX170501113500 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of right foot show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontRightHand
PX170501114700 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of right hand show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontUpperLeftArm
PX170501113900 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of upper left arm show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontUpperLeftLeg
PX170501112700 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of upper left leg show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontUpperRightArm
PX170501113700 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of upper right arm show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_FrontUpperRightLeg
PX170501112500 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Front side of upper right leg show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_LeftLowerBack
PX170501111900 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Left side of lower back show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_LeftShoulder
PX170501110600 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Left shoulder show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_LeftUpperBack
PX170501111300 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Left side of upper back show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_RightButtock
PX170501112300 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Right side of buttocks show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_RightChest
PX170501110800 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Right side of chest show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_RightGroin
PX170501112100 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Right side of groin show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_RightStomach
PX170501111500 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Right side of stomach show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedNow_Scalp
PX170501110200 On the drawings below, mark areas of your more
body affected with psoriasis NOW. Scalp show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackLeftFoot
PX170501123400 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of left foot show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackLeftHand
PX170501124600 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of left hand show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackLowerLeftArm
PX170501124400 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of lower left arm show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackLowerLeftLeg
PX170501123200 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of lower left leg show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackLowerRightArm
PX170501124200 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of lower right arm show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackLowerRightLeg
PX170501123000 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of lower right leg show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackRightFoot
PX170501123600 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of right foot show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackRightHand
PX170501124800 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of right hand show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackUpperLeftArm
PX170501124000 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of upper left arm show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackUpperLeftLeg
PX170501122800 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of upper left leg show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackUpperRightArm
PX170501123800 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of upper right arm show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_BackUpperRightLeg
PX170501122600 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Back side of upper right leg show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_CenterButtock
PX170501122200 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Center of buttocks show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_CenterChest
PX170501120700 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Center of chest show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_CenterGroin
PX170501122000 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Center of groin show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_CenterStomach
PX170501121400 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Center of stomach show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_Face
PX170501120100 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Face show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_FrontNeck
PX170501120300 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Front of neck show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_LeftButtock
PX170501122400 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Left side of buttocks show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_LeftChest
PX170501120900 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Left side of chest show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_LeftGroin
PX170501125000 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Left side of groin show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_LeftStomach
PX170501121600 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Left side of stomach show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_RightLowerBack
PX170501121800 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Right side of lower back show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_RightShoulder
PX170501120500 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Right shoulder show less
N/A
PX170501_Psoriasis_BodyAreas_AffectedWorst_RightUpperBack
PX170501121200 On the drawings below, mark areas of your more
body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Right side of upper back show less
N/A
PX170501_Psoriasis_Family_History
PX170501070000 Do you have any blood relatives affected more
with psoriasis? show less
Variable Mapping
PX170501_PUVA_Usage_Duration_Years
PX170501300100 Phototherapy PUVA usage duration - years N/A
PX170501_PUVA_Usage_Effectiveness
PX170501300300 Phototherapy PUVA usage effectiveness on 0-5 more
scale (0 = not effective, 5 = very effective), please circle one: show less
N/A
PX170501_Raptiva_Usage_Comments
PX170501260400 Biologicals (injected) Raptiva usage comments: N/A
PX170501_Raptiva_Usage_Duration_Months
PX170501260200 Biologicals (injected) Raptiva usage more
duration - months show less
N/A
PX170501_Remicade_Usage_Comments
PX170501280400 Biologicals (injected) Remicade usage comments: N/A
PX170501_Remicade_Usage_Duration_Months
PX170501280200 Biologicals (injected) Remicade usage more
duration - months show less
N/A
PX170501_Smoke_Cigarettes_NumberPerDay
PX170501130100 How many of the following do you smoke per more
day? Cigarettes show less
Variable Mapping
PX170501_Smoke_Pipes_NumberPerDay
PX170501130300 How many of the following do you smoke per more
day? Pipes show less
Variable Mapping
PX170501_Soriatane_Usage_Duration_Years
PX170501210100 Systemic medications (oral medications) more
Soriatane usage duration - years show less
N/A
PX170501_Soriatane_Usage_Effectiveness
PX170501210300 Systemic medications (oral medications) more
Soriatane usage effectiveness on 0-5 scale (0 = not effective, 5 = very effective), please circle one: show less
N/A
PX170501_UVB_Usage_Duration_Years
PX170501310100 Phototherapy UVB usage duration - years N/A
PX170501_UVB_Usage_Effectiveness
PX170501310300 Phototherapy UVB usage effectiveness on 0-5 more
scale (0 = not effective, 5 = very effective), please circle one: show less
N/A
Skin
Measure Name

Personal and Family History of Psoriasis

Release Date

November 12, 2010

Definition

This measure consists of a questionnaire to determine the respondent's personal and family history of psoriasis and other autoimmune diseases, as well as current symptoms and medication use and its effectiveness.

Purpose

Psoriasis is a chronic autoimmune disease of the skin. Psoriasis can also cause joint inflammation, which is known as psoriatic arthritis. Recent evidence suggests that psoriasis is associated with diabetes, hypertension, and coronary artery disease.

Keywords

arthritis, psoriasis, scaly, redness, autoimmune disease, skin

Measure Protocols
Protocol ID Protocol Name
170501 Personal and Family History of Psoriasis

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